Keratoconus-link is an interactive, worldwide forum for people with keratoconus. The link offers those with keratoconus a unique opportunity to share their "KC" experiences and concerns with others who can truly understand the daily frustrations of this condition. The camaraderie shared and support offered to each other is invaluable. In addition, a cadre of eye care practitioners - contact lens fitters, optometrists, and ophthalmologists - regularly participate. 

E-mail messages, or "postings", are sent to all subscribers on the list creating a worldwide keratoconus family. In addition to providing a forum for discussion of issues related to keratoconus, keratoconus-link provides information on other relevant Internet resources.

Subscribers will automatically receive INDIVIDUAL messages throughout the day. Or, if you prefer, a DIGEST format (one message sent daily with all that day’s messages included is available). To switch to the DIGEST format, follow directions in the "welcome" message you will receive when you subscribe.

To subscribe to the list, complete the registration form below (or send the information via email to: info@nkcf.org).

All postings will automatically be sent to all the subscribers on the list. Subscribers are asked to restrict postings to subject matter that will be of value to all other subscribers. 

Participants should not act on medical advice offered over the Internet. There is no substitute for the sound advice from one’s personal eye care provider. Opinions expressed by practitioners on the net should not be construed as authoritative or as direct medical advice.

IMPORTANT: Before participating in KC-Link, please review the recommendations page for suggestions on how to make your experience on the list a positive and rewarding one. Also, please make sure to review the list etiquette items, particularly if you have not participated on an email list before.

Catherine Warren, RN
Moderator

KERATOCONUS-LINK REGISTRATION FORM
(*Required)

TERMS OF USE

KC-Link is an email based support group for the keratoconus community, a place where members can ask questions and share their own keratoconus insights and experiences.

By subscribing to KC-Link, you agree to the following terms and conditions. Please review these terms of use carefully.

As a subscriber, I agree:

• To post messages that are relevant to the discussion group.



• That any non relevant or unacceptable messages may not be posted or may be removed by the list moderator.



• Not to express views of a religious or political nature.



• Not to post libelous or illegal material, solicit or advertise products or services.



• Not to post harassing or discriminatory comments.



• That any message that violates the conditions, or departs from the intended purpose of this listserve will not be posted.



• To cite literature references when relevant or clearly state that information posted is personal opinion.



• That any member who breaches these guidelines through hostile, abusive or other inappropriate messages will have their account privileges revoked.



• That the National Keratoconus Foundation does not accept any responsibility for the content of the discussion group or endorse any advice contained therein. By using this listserve, reliance on any opinion, advice, statement, or information is solely at my own discretion.



• That the views expressed by members of this listserve are their own and do not reflect the position of the National Keratoconus Foundation, the moderator or other members.



• Testimonials or criticisms of named practitioners will not be placed on the link.

KC-link is not a substitute for medical advice or diagnosis. Subscribers are strongly encouraged to discuss potential medical decisions with their eye care professionals.

All users agree to the above terms and also agree to not hold the National Keratoconus Foundation responsible for any of the information or procedures discussed. Any treatment or other decisions made are the responsibility of the user and should be made by consulting with their eye care professionals.

Privacy

KC-Link averages 2000+ members worldwide. Your messages will be potentially read by all members. This is an email-based listserve; your email address may be visible with your message depending on how your email service sends messages. We recommend that you do not post any other personal information such as phone numbers or your home address.

(Please make sure to review the KC-Link recommendations page prior to participating.)