The NKCF has developed a variety of programs to provide support and information to those with keratoconus and their families:
keratoconus resources | family



Information about KC What is Keratoconus? A Reference Guide for Patients and their Families” is a 24 page booklet explaining keratoconus in easy to understand language.
KC Information | PK_ENGLISH-11 Corneal Transplant Surgery: A Reference Guide for Patients and their Families” offers a comprehensive overview of transplant surgery to help the individual better understand the surgery and what to expect both pre and post operatively.

Both booklets, in English and Spanish, are available to patients and eye care providers worldwide. To receive a copy in the mail, send your mailing address to: or you can request either one online:


KC-Link is a worldwide interactive forum for people with keratoconus. It is a free e-mail based mail list for both keratoconus patients and eye care providers. The KC-link offers those with keratoconus a unique opportunity to share their “KC” experiences and concerns with others who can truly understand the frustrations of this condition. For more information go to: KC-LINK


Toll Free Information “Warmline” (800-521-2524)  A place where patients and family members can call to ask questions about their keratoconus and receive information, referrals and support.


NKCF SPANISH WEBSITE (Currently under construction)

To ensure the National Keratoconus Foundation (NKCF) reaches the greatest possible number of keratoconus patients, we’ve expanded our education and outreach efforts to the Latino community.  Find out more about the NKCF Spanish website.


Keratoconus stories and testimonials Our newsletter is published three times a year and distributed to individuals and eye care providers worldwide. It offers information about keratoconus, new treatment options, new lenses and lens care product information, reports current research in the field and fosters a sense of community among those with this condition.


The NKCF maintains a list of OutReach Volunteers for those individuals who want personal contact with other keratoconus patients. For more information contact us at:

The NKCF sponsors Patient Education Seminars in cities throughout the US.

Support Groups are a means of meeting others with keratoconus, learning more about this condition, sharing information and coping skills. The NKCF will assist individuals who would like to start a local support group. For more information contact us at:


The NKCF offers a list of eye care providers who have a special expertise in treating keratoconus.

  • The Ophthalmologists who participate are Board Certified in Ophthalmology and Fellowship trained in Cornea and External Eye Diseases.
  • The Optometrists are primarily Diplomats of the Cornea and Contact Lens Division of the American Academy of Optometrists (AAO).
  • Contact Lens Fitters are Fellows of the Contact Lens Society of America.

To request a referral, contact us at: All our referrals are grouped by state, so tell us what state you live in.