Discovery Eye Foundation
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Resources
The NKCF has developed a variety of programs to provide support and information to those with keratoconus and their families:

PATIENT INFORMATION GUIDES

kc-info "What is Keratoconus? A Reference Guide for Patients and their Families" is a 24 page booklet explaining keratoconus in easy to understand language.
PK_ENGLISH-11 “Corneal Transplant Surgery: A Reference Guide for Patients and their Families” offers a comprehensive overview of transplant surgery to help the individual better understand the surgery and what to expect both pre and post operatively.

Both booklets, in English and Spanish, are available to patients and eye care providers worldwide. To receive a copy in the mail, send your mailing address to: This e-mail address is being protected from spambots. You need JavaScript enabled to view it or you can request either one online: What is Keratoconus? A Reference Guide for Patients and their Families or Corneal Transplant Surgery: A Reference Guide for Patients and their Families.

Eye Care Providers: To order copies of these booklets for your office download the order form here. Print, complete and fax to: 310-623-1837

KC-LINK

KC-Link is a worldwide interactive forum for people with keratoconus. It is a free e-mail based mail list for both keratoconus patients and eye care providers. The KC-link offers those with keratoconus a unique opportunity to share their "KC" experiences and concerns with others who can truly understand the frustrations of this condition. For more information go to: KC-LINK

NKCF Forum

The Forum is a web based bulletin board providing another means of interacting with the KC community right here on this website. It requires a login with a user name and password. For more information and to register go to: NKCF Forum

NKCF PATIENT REGISTRY

The NKCF Registry is a database of demographic information about keratoconus. This information is used for statistical purposes and as a mailing list for the NKCF newsletter; notices from the NKCF about any seminars/support groups or KC events in your area; and the Discovery Eye Foundation's newsletter (this is our parent organization, it funds research in keratoconus as well as other eye diseases). Names and addresses are kept confidential, as is any information you send to the NKCF. Our list is not used for any other purpose, nor is it shared or sold. To participate in the registry click here: KC Patient Registry.

NKCF SPANISH WEBSITE

To ensure the National Keratoconus Foundation (NKCF) reaches the greatest possible number of keratoconus patients, we've expanded our education and outreach efforts to the Latino community.  Find out more about the NKCF Spanish website here.

NKCF NEWSLETTER

2008-vol3-sm Our newsletter is published three times a year and distributed to individuals and eye care providers worldwide. It offers information about keratoconus, new treatment options, new lenses and lens care product information, reports current research in the field and fosters a sense of community among those with this condition.

NKCF OUTREACH PROGRAMS

The NKCF maintains a list of OutReach Volunteers for those individuals who want personal contact with other keratoconus patients. For more information contact us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

NKCF PATIENT EDUCATION SEMINARS
The NKCF sponsors Patient Education Seminars in cities throughout the US.

NKCF SUPPORT GROUPS
Support Groups are a means of meeting others with keratoconus, learning more about this condition, sharing information and coping skills. The NKCF will assist individuals who would like to start a local support group. For more information contact us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

NKCF REFERRAL SERVICE

The NKCF offers a list of eye care providers who have a special expertise in treating keratoconus.
  • The Ophthalmologists who participate are Board Certified in Ophthalmology and Fellowship trained in Cornea and External Eye Diseases.
  • The Optometrists are primarily Diplomats of the Cornea and Contact Lens Division of the American Academy of Optometrists (AAO).
  • Contact Lens Fitters are Fellows of the Contact Lens Society of America.

To request a referral, contact us at: This e-mail address is being protected from spambots. You need JavaScript enabled to view it All our referrals are grouped by state, so tell us what state you live in.

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