The National Keratoconus Foundation (NKCF) is an outreach program of the Discovery Eye Foundation, a non-profit organization. The NKCF is dedicated to increasing the awareness and understanding of keratoconus and the support of scientific research into the cause and treatment of keratoconus.
The Board of Directors of the Discovery Eye Foundation founded the NKCF in 1986 with a grant from Jane and Norman Neely. Mr. Neely had keratoconus and was frustrated by the lack of information available to patients about this condition. The NKCF was created to:
- provide support and information about keratoconus to patients, their families, and eye care professionals.
- provide educational materials and support programs designed to help those with keratoconus better understand and cope with this condition.
- provide support and encourage researchers to work together to discover new technology for keratoconus treatment and eventually a cure for keratoconus.
The NKCF has developed a variety of programs to accomplish these goals. They include:
PATIENT INFORMATION GUIDES
Both booklets, in English and Spanish, are available to patients and eye care providers worldwide. To receive a copy in the mail, send your mailing address to:firstname.lastname@example.org or you can request either one online: What is Keratoconus? A Reference Guide for Patients and their Families or Corneal Transplant Surgery: A Reference Guide for Patients and their Families.
KC-Link is a worldwide interactive forum for people with keratoconus. It is a free e-mail based mail list for both keratoconus patients and eye care providers. The KC-link offers those with keratoconus a unique opportunity to share their “KC” experiences and concerns with others who can truly understand the frustrations of this condition. For more information go to: KC-LINK
NKCF PATIENT REGISTRY
The NKCF Registry is a database of demographic information about keratoconus. This information is used for statistical purposes and as a mailing list for the NKCF newsletter; notices from the NKCF about any seminars/support groups or KC events in your area; and the Discovery Eye Foundation’s newsletter (this is our parent organization, it funds research in keratoconus as well as other eye diseases). Names and addresses are kept confidential, as is any information you send to the NKCF. Our list is not used for any other purpose, nor is it shared or sold. To participate in the registry click here: KC Patient Registry.
|Our newsletter is published three times a year and distributed to individuals and eye care providers worldwide. It offers information about keratoconus, new treatment options, new lenses and lens care product information, reports current research in the field and fosters a sense of community among those with this condition.|
NKCF OUTREACH PROGRAM
The NKCF maintains a list of OutReach Volunteers for those individuals who want personal contact with other keratoconus patients. For more information contact us at: email@example.com
NKCF PATIENT EDUCATION SEMINARS
The NKCF sponsors Patient Education Seminars in cities throughout the US.
NKCF SUPPORT GROUPS
Support Groups are a means of meeting others with keratoconus, learning more about this condition, sharing information and coping skills. The NKCF will assist individuals who would like to start a local support group. For more information contact us at: firstname.lastname@example.org
NKCF REFERRAL SERVICE
The NKCF offers a list of eye care providers who have a special expertise in treating keratoconus.
- The Ophthalmologists who participate are Board Certified in Ophthalmology and Fellowship trained in Cornea and External Eye Diseases.
- The Optometrists are primarily Diplomats of the Cornea and Contact Lens Division of the American Academy of Optometrists (AAO).
- Contact Lens Fitters are Fellows of the Contact Lens Society of America.
To request a referral, contact us at: email@example.com All our referrals are grouped by state, so tell us what state you live in.
NKCF RESEARCH PROGRAM
- NKCF Collaborative Research Effort at the annual Association for Research in Vision and Ophthalmology (ARVO) Meeting. The NKCF hosts roundtable discussion group meetings each year, attended by an international group of ophthalmologists, optometrists and scientists.